My Care, I Care: London HIV Patient Survey

Survey loading

This survey is for people with diagnosed HIV. It is being carried out by Sigma Research on behalf of the London Specialised Commissioning Group (SCG). The results will be used to improve NHS services for people living with diagnosed HIV. The survey is ANONYMOUS – you will not be asked for your name or address and do not need to provide us with any means of contacting you in the future. Please answer all questions honestly.

Please take part if you …

have diagnosed HIV, and
use NHS HIV services in London, and
are aged 16 or older.

What’s it about?

The survey asks about the NHS HIV services you use, why you use the services you do, your experience of using them, and how you feel these could be improved. It will take about 20 minutes to complete the survey.

What about data protection?

We guarantee your anonymity. We will not collect any information about you that would allow anybody to identify you. A report of our results will be produced by the end of June 2012. It will be available to download from our website at www.sigmaresearch.org.uk and promoted via clinics, patient forums and HIV charities.

Who are we?

Sigma Research is a social research group specialising in the behavioural and policy aspects of HIV and sexual health, as part of the London School of Hygiene & Tropical Medicine. In the last ten years, Sigma Research has undertaken more than fifty research and development projects concerned with the impact of HIV on the sexual and social lives of a variety of populations. You can get more information about this survey at http://sigmaresearch.org.uk/projects/project54. If you have any concerns about the study please contact Peter Keogh (peter.keogh@lshtm.ac.uk)

Please complete this survey ONLY ONCE.

Please tick the boxes below to say that you have read and understood what the questionnaire is about and that you want to take part. ANSWER REQUIRED

I am aged 16 or older.

And ANSWER REQUIRED

I have read and understood the above information and want to take part in the survey

OR

I have read and understood the above information and DO NOT want to take part.

$$ Exit options

Under 16

Participate

The Rest

Thank you for your interest in the HIV patient engagement project. The results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

Demographics - About you ...

Are you ..

Female

Male

How old are you? ANSWER REQUIRED

How old are you?

Which Local Authority do you live in?
(e.g Lambeth, Hackney) ). If you don’t know your local authority, please give the FIRST HALF and the first number of your home postcode (e.g. E17 1; SW2 3) or the name of your area (eg. Stockwell, Walthamstow)

Which Local Authority do you live in?
(e.g Lambeth, Hackney) ). If you don’t know your local authority, please give the FIRST HALF and the first number of your home postcode (e.g. E17 1; SW2 3) or the name of your area (eg. Stockwell, Walthamstow)

What are your current living arrangements?
Tick all that apply

I live alone

I live with a partner

I live with a child / children I am responsible for

I live with my parents / step parents

I live with other family members

I live with friends

I live with housemates or people I share with

I live in a hostel or other temporary accommodation

I live in temporary accommodation

I am in prison

I live in a detention centre

I am homeless

Other living arrangements

Please say which other family members you live with?

Please say which other family members you live with?

Please say what other living arrangments you have?

Please say what other living arrangments you have?

What is your ethnic group?

WHITE: British

WHITE: Irish

WHITE: Any other white background

BLACK: African

BLACK: Caribbean

BLACK: Any other Black background

MIXED: White and Black Caribbean

MIXED: White and Black African

MIXED: White and Asian

MIXED: Any other background

ASIAN: Indian

ASIAN: Pakistani

ASIAN: Bangladeshi

ASIAN: Chinese

ASIAN: Any other Asian background

OTHER: Arab

OTHER: Any other ethnic group

Please say what other White background?

Please say what other White background?

Please say what other Black background?

Please say what other Black background?

Please say what other mixed ethnic groups background?

Please say what other mixed ethnic groups background?

Please say what other Asian background?

Please say what other Asian background?

Please say what other ethnic group background?

Please say what other ethnic group background?

Thank you for your interest in the HIV patient engagement project. It is for adults 16 years and over, we cannot use your data. The results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

Demographics - About you ...

Which country were you born in?

Which country were you born in?

How long, in total, have you lived in the UK?
(e.g. 3 months, 5 years 8 months)

Year/s

Month/s

Do you have any problems associated with immigration to the UK?

No

Yes

Please describe your problems associated with immigration to the UK.

Please describe your problems associated with immigration to the UK. [Type your answer here]

Demographics - About you..

What is your highest educational qualification?

I have no educational qualifications

Primary education only (left school at 11 or 12)

O-levels/ GCSEs/ CSEs or equivalent (left school at age 16)

A-levels or equivalent (left school at age 18)

University degree or higher

Other, such as vocational or professional qualifications

Please say what other vocational or professional qualifications you have.

Please say what other vocational or professional qualifications you have.

Are you:

Heterosexual (straight)

Gay

Lesbian

Bisexual

Other

How do you describe yourself?

How do you describe yourself?

Are you a Trans-person? (Transexual / Transgender – someone who has changed or intends to change their biological sex)

No

Yes

How do you describe yourself?

How do you describe yourself? [Type your answer here]

Do you have haemophilia (a blood disorder that impairs the body’s ability to control bleeding)?

No

Yes

Have you ever injected drugs (not including any prescribed by your doctor)?

No

Yes

Have you injected drugs in the last 12 months?

No

Yes

Demographics - About you ...

Which of these best describes your current situation?
Tick all that apply

Full-time education

Part-time education

On a training scheme

Full-time employment

Part-time employment

Self-employment

Casual / cash-in-hand employment

Volunteering

Carer / homemaker

In employment and receiving tax credits

Not in employment and registered for benefits

Not in employment and not registered for benefits

Unable to work (long-term illness / disability / medically retired)

Retired / pensioner

Not allowed to work (immigration reasons)

In prison

Other

Please say what other.

Please say what other.

Your HIV Diagnosis.....

Have you ever received an HIV test result? ANSWER REQUIRED

No, I've never received an HIV test result

Yes, I've tested positive (I have HIV infection)

Yes, my last test was negative (I did not have HIV)

This research is about people living with HIV. If you have Never tested or your last test was HIV Negative we cannot use your data. You are very welcome to read and complete the rest of the survey however we will be unable to use your data.
What would you like to do?

Exit the survey now

Continue reading the survey

In which year were you first diagnosed HIV positive?

In which year were you first diagnosed HIV positive?

Were you first diagnosed with HIV within the last 12 months?

No

Yes

Were you first diagnosed with HIV in the UK?

No

Yes

Thank you for your interest in the HIV patient engagement project, the results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

Your HIV Diagnosis.....

In what country were you first diagnosed with HIV?

In what country were you first diagnosed with HIV?

Were you first diagnosed with HIV in London?

No

Yes

In what kind of service were you first diagnosed with HIV?

At your General Practitioner / family doctor

At a hospital in a GUM / STD / HIV clinic

At a hospital at another type of out-patient clinic

In hospital at Accident & Emergency (A&E)

In hospital on a ward (as an in-patient)

At an ante-natal clinic (during pregnancy)

At a community testing centre (for example, fasTest)

At a private clinic

While donating blood

I used a home testing kit

Somewhere else

Please say where else:

Please say where else:

What was the name of the hospital where you were first diagnosed with HIV?

What was the name of the hospital where you were first diagnosed with HIV?

Your HIV clinic in London

On this page is a list of the twenty-eight HIV clinics in London. The next set of questions will ask you about your use of these clinics. Please refer to this list when answering these questions.

56 Dean Street (formerly The Victoria Clinic)
Barking Hospital - The Sydenham Centre / Outpatients East
Barts & The London - The HIV Service
Beckenham Beacon - Sexual Health Clinic
Central Middlesex Hospital - The Patrick Clements Clinic
Charing Cross Hospital - The West London Centre for Sexual Health
Chelsea & Westminster Hospital - The Kobler Clinic
Croydon University Hospital (formerly Mayday) - Heath Clinic
Ealing Hospital HIV clinic
Epsom St. Helier Hospital
Hillingdon Hospital - The Tudor Centre for Sexual Health
Homerton Hospital
Kings College Hospital - Caldecot Centre
Kingston Hospital - Wolverton Centre
Lewisham Hospital - The Alexis Clinic
Mortimer Market Centre (off Tottenham Court Road)
Newham Hospital - The Greenway Centre
North Middlesex Hospital - T1 Coleridge Unit
Northwick Park Hospital - Northwick Park GUM clinic
Queen Elizabeth Woolwich - Trafalgar Clinic
Queen Mary’s Hospital - The Roehampton Clinic
Royal Free Hospital - Ian Charleson Day Centre
St. Ann’s Hospital - St Ann’s Sexual Health Centre
St. Georges Hospital - The Courtyard Clinic
St. Mary’s Hospital (Imperial) - The Wharfside Clinic
St. Thomas’s Hospital (GSTFT) - Harrison Wing
West Middlesex Hospital - Sexual Health West Middlesex
Whipps Cross Hospital

Did you know that you could use any of the 28 HIV out-patients clinics in Greater London, for free, if you wanted to?

NO I did not know this

YES I knew this

I was not sure about this

How many of these different HIV clinics did you attend in the last 12 months? ANSWER REQUIRED

None

One

Two

Three

Four or more

Why did you not attend an HIV out-patients clinic in the last year?

Why did you not attend an HIV out-patients clinic in the last year? [Type your answer here]

Why did you attend more than one HIV out-patients clinic in the last year?

Why did you attend more than one HIV out-patients clinic in the last year? [Type your answer here]

About your main clinic

The next questions are about the main HIV clinic you have visited for routine monitoring and care in the last 12 months – your “main” clinic.

In the last year, what was your main HIV clinic in London?

56 Dean Street (formerly The Victoria Clinic)

Barking Hospital - The Sydenham Centre / Outpatients East

Barts & The London - The HIV Service

Beckenham Beacon - Sexual Health Clinic

Central Middlesex Hospital - The Patrick Clements Clinic

Charing Cross Hospital - The West London Centre for Sexual Health

Chelsea & Westminster Hospital - The Kobler Clinic

Croydon University Hospital (formerly Mayday) - Heath Clinic

Ealing Hospital HIV clinic

Epsom St. Helier Hospital

Hillingdon Hospital - The Tudor Centre for Sexual Health

Homerton Hospital

Kings College Hospital - Caldecot Centre

Kingston Hospital - Wolverton Centre

Lewisham Hospital - The Alexis Clinic

Mortimer Market Centre (off Tottenham Court Road)

Newham Hospital - The Greenway Centre

North Middlesex Hospital - T1 Coleridge Unit

Northwick Park Hospital - Northwick Park GUM clinic

Queen Elizabeth Woolwich - Trafalgar Clinic

Queen Mary’s Hospital - The Roehampton Clinic

Royal Free Hospital - Ian Charleson Day Centre

St. Ann’s Hospital - St Ann’s Sexual Health Centre

St. Georges Hospital - The Courtyard Clinic

St. Mary’s Hospital (Imperial) - The Wharfside Clinic

St. Thomas’s Hospital (GSTFT) - Harrison Wing

West Middlesex Hospital - Sexual Health West Middlesex

Whipps Cross Hospital

My main clinic is not on this list

Please write your main clinic in here

Please write your main clinic in here

About your main clinic ...

The next set of questions are about

How long have you been visiting ?

Since I was first diagnosed with HIV (never been to any other clinic)

Less than a year

1-2 years

3-4 years

5-7 years

8-10 years

11+ years

In the last year, how many times did you go to ?

Not at all in the last year

Once or twice

Three or four times

Five or six times

Seven to nine times

More than ten times

How do you usually receive blood results from ?
Tick as many as apply

By visiting the clinic in person

By talking on the phone

By text

By letter

By email

Via my GP

What are the most important factors in your decision to use ?
Tick as many reasons as apply

The clinic is close by or easy to get to.

The services on offer are suit my needs very well (eg. out of hours clinics, email or phone clinics, home delivery)

The staff are excellent and the clinic has a great reputation

No-one I know will see me going there so my privacy is protected

It offers extra services which are important to me (eg. co-infection clinics; newfill; pregnancy/ fertility services; in-patients care; links to other services).

I feel comfortable there

I feel involved in decisions about my care

Other reason

Please say which other reason?

Please say which other reason? [Type your answer here]

About your main clinic ...

For you personally what is the SINGLE most important factor in your decision to use ?

The clinic is close by or easy to get to.

The services on offer are suit my needs very well (eg. out of hours clinics, email or phone clinics, home delivery)

The staff are excellent and the clinic has a great reputation

No-one I know will see me going there so my privacy is protected

It offers extra services which are important to me (eg. co-infection clinics; newfill; pregnancy/ fertility services; in-patients care; links to other services).

I feel comfortable there

I feel involved in decisions about my care

Other reason

Please say which other reason?

Please say which other reason? [Type your answer here]

For you personally, what is the most important service improvement that your main clinic could make?

For you personally, what is the most important service improvement that your main clinic could make? [Type your answer here]

How satisfied are you about the way you and the clinic staff make decisions together about your care (including HIV treatments)?

Very satisfied

Somewhat satisfied

Not at all satisfied

The last time you visited your main clinic...

Before today, when did you last visit ?

Within the last 4 weeks

Within last 3 months

Within the last 6 months

Within the last 12 months

More than a year ago

For that last visit to , how did you get there?
Please tick as many as apply

Bus

Tube

Train

Taxi / mini-cab

Private car

Walk only

For that last visit to how long did it take you to get there from your home (or workplace)?

Less than 15 minutes

15 - 30 minutes

31 - 45 minutes

46 - 60 minutes

61 - 90 minutes

91 -120 minutes

2 – 3 hours

3 – 4 hours

more than 4 hours

The last time you visited your main clinic...

Why did you attend for that last visit?
Please tick as many as apply

For an emergency appointment

Because you had a specific health problem / illness

For a routine appointment with a doctor

For an investigation / diagnostic tests

For a procedure

For an appointment with another member of the HIV team eg. dietician

To give a blood sample

To receive test results

To collect a prescription

For an sexual health (STI) check-up

For treatment of a sexually transmitted infection

Other reason

Please say which procedure?

Please say which procedure? [Type your answer here]

Please say what other reason?

Please say what other reason? [Type your answer here]

At that last visit, which staff members did you see
Please tick as many answers as apply

Receptionist

Health advisor/s

Nursing staff

An HIV doctor

A doctor from another speciality

Pharmacist

Dietician / nutritionist

Psychologist

Occupational therapist (OT)

Peer Advisor / Patient rep

Social worker

First point worker

Health Trainer

Other voluntary sector worker

Sexual health staff

For that last visit, how long were you in the clinic?

Less than 15 minutes

15 – 30 minutes

31 – 45 minutes

46 – 60 minutes

61 – 90 minutes

91 -120 minutes

2 – 3 hours

3 – 4 hours

More than 4 hours

Using HIV treatments

Are you currently taking HIV treatment?

No

Yes

Why are you not currently taking HIV treatment?
Tick as many as apply.

My doctor says I don’t need treatment at the moment

I don’t feel I need treatment at the moment

To avoid the side-effects

I'm afraid people will notice

I don't want to be reminded about HIV every day

It would interfere with my work / education / family

I don’t believe HIV treatments will help me

It interacts with my other medication/s

Because I would need to pay for them and I can’t afford it

Due to cultural or religious beliefs

Other reason

Please say what other reason you have?

Please say what other reason you have? [Type your answer here]

Using HIV treatments

Do you feel you know enough about the antiretroviral treatments you are taking, at the moment?

No

Yes

How many doses of HIV treatments have you missed in the last two weeks?

None

ONE or TWO doses

THREE or FOUR doses

FIVE or SIX doses

SEVEN or MORE doses

What was the result of your viral load test the last time you had it monitored?

Undetectable

Detectable

I was told but I don't remember the result

It was measured but I was not told the result

It was not measured

I don't remember

What was your cd4 count last time it was measured?

Less than 200 cells

200-349 cells

350-500 cells

More than 500 cells

I was not told the result

I was told but I don't remember the result

GPs and family doctors (Primary care services)

Are you registered with a GP or primary care service?

No

Yes

Why are you not registered with a GP / primary care service?

Why are you not registered with a GP / primary care service? [Type your answer here]

How long have you been using this GP or primary care service?

Since I was diagnosed (not been to any other GP since HIV diagnosis)

Less than a year

1-2 years

3-4 years

5-7 years

8-10 years

11+ years

How many times have you used this GP service in the last year?

Not at all in the last year

Once or twice

Three or four times

Five or six times

Seven to nine times

More than ten times

Does your GP / primary care service know that you have HIV?

No

Yes

Don't know

Why do they not know?

Why do they not know? [Type your answer here]

Is your GP involved in your HIV care?

No

Yes

How is your GP / primary care service involved in your HIV monitoring and care?

How is your GP / primary care service involved in your HIV monitoring and care? [Type your answer here]

For you personally what is the single most important change that your GP / primary care service could make to improve the service?

For you personally what is the single most important change that your GP / primary care service could make to improve the service? [Type your answer here]

Other needs and services used...

Do you have any of the following conditions at the moment?
Tick as many as apply

Pregnancy

Tuberculosis (TB)

Hepatitis B

Hepatitis C

Ongoing sexually transmitted infection (other than HIV)

New (Acute) sexually transmitted infection (other than HIV)

Kidney problems

Liver problems

Heart problems

Cancer

Diabetes

Neurocognitive disorders/ brain impairment/ memory loss

High blood pressure

High cholesterol

Psychiatric or mental health problems

Problems with drug or alcohol use

Pregnancy

Are you pregnant at the moment?

No

Yes

Who knows you are pregnant?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your pregnancy?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Tuberculosis?

Do you have Tuberculosis at the moment?

No

Yes

Who knows you have Tuberculosis?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Tuberculosis?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Hepatitis B

Do you have Hepatitis B at the moment?

No

Yes

Who knows you have Hepatitis B?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Hepatitis B?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Hepatitis C

Do you have Hepatitis C at the moment?

No

Yes

Who knows you have Hepatitis C?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Hepatitis C?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Ongoing sexually transmitted infections

Do you have an ongoing sexually transmitted infection (other than HIV) at the moment?

No

Yes

Who knows you have an ongoing sexually transmitted infection (other than HIV?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your ongoing sexually transmitted infection (other than HIV?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

New (acute) sexually transmitted infections

Do you have a new (acute) sexually transmitted infection (other than HIV) at the moment?

No

Yes

Who knows you have a new (acute) sexually transmitted infection (other than HIV)?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your new (acute) sexually transmitted infection (other than HIV)?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Kidney problems

Do you have kidney problems at the moment?

No

Yes

Who knows you have kidney problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your kidney problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Liver problems

Do you have liver problems at the moment?

No

Yes

Who knows you have liver problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your liver problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Heart problems

Do you have heart problems at the moment?

No

Yes

Who knows you have heart problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your heart problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Cancer

Do you have cancer at the moment?

No

Yes

Who knows you have Cancer?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Cancer?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Diabetes

Do you have diabetes at the moment?

No

Yes

Who knows you have diabetes?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your diabetes?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Neurocognitive disorders/ brain impairment/ memory loss

Do you have any neurocognitive disorders/ brain impairment/ memory loss at the moment?

No

Yes

Who knows you have neurocognitive disorders/ brain impairment/ memory loss?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your neurocognitive disorders/ brain impairment/ memory loss?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

High blood pressure?

Do you have high blood pressure at the moment?

No

Yes

Who knows you have high blood pressure?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your high blood pressure?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

High Cholesterol

Do you have high cholesterol at the moment?

No

Yes

Who knows you have high cholesterol?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your high cholesterol?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Psychiatric (mental health) problems

Do you have psychiatric or mental health problems at the moment?

No

Yes

Who knows you have psychiatric or mental health problems ?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your psychiatric or mental health problems?

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Problems with drug or alcohol use

Do you have problems with drug or alcohol use at the moment?

No

Yes

Who knows you have problems with drug or alcohol use?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your problems with drug or alcohol use?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Services used...

In the last year, what other NHS services have you used?
Tick all that apply

NHS walk-in centre

Accident & Emergency (A&E)

Outpatient clinic (not HIV) for an investigation

Outpatient clinic (not HIV) for monitoring or care.

Planned (inpatient) admission to hospital

Emergency (inpatient) admission to hospital

Intensive care

Maternity services

Sexual health (STI/GUM) service

Substance misuse services

Other NHS services

Other than NHS services, what other agencies (e.g. voluntary sector, council services, websites etc.) have been most helpful for you in managing your HIV?
Please write in the names below

Other than NHS services, what other agencies (e.g. voluntary sector, council services, websites etc.) have been most helpful for you in managing your HIV?
Please write in the names below [Type your answer here]

What do you need?

In the last 12 months, have you had any problems (for ANY reason) in relation to:
Please put one answer on each row (answer all 19 questions)

Not Applicable

No

Yes

1. Housing and living conditions

1. Housing and living conditions=Not Applicable

1. Housing and living conditions=No

1. Housing and living conditions=Yes

2. Eating and drinking

2. Eating and drinking=Not Applicable

2. Eating and drinking=No

2. Eating and drinking=Yes

3. Sleeping

3. Sleeping=Not Applicable

3. Sleeping=No

3. Sleeping=Yes

4. Household chores and self care

4. Household chores and self care=Not Applicable

4. Household chores and self care=No

4. Household chores and self care=Yes

5. Mobility - ability to get about

5. Mobility - ability to get about=Not Applicable

5. Mobility - ability to get about=No

5. Mobility - ability to get about=Yes

6. Money - having enough to live on

6. Money - having enough to live on =Not Applicable

6. Money - having enough to live on =No

6. Money - having enough to live on =Yes

7. Anxiety and depression

7. Anxiety and depression =Not Applicable

7. Anxiety and depression =No

7. Anxiety and depression =Yes

8. Self-confidence

8. Self-confidence =Not Applicable

8. Self-confidence =No

8. Self-confidence =Yes

9. Friendships

9. Friendships =Not Applicable

9. Friendships =No

9. Friendships =Yes

10. Looking after children

10. Looking after children =Not Applicable

10. Looking after children =No

10. Looking after children =Yes

11. Relationships

11. Relationships =Not Applicable

11. Relationships =No

11. Relationships =Yes

12. Sex

12. Sex =Not Applicable

12. Sex =No

12. Sex =Yes

13. Discrimination

13. Discrimination =Not Applicable

13. Discrimination =No

13. Discrimination =Yes

and finally ...

Is there anything you would like to add that has not been addressed? Or, do you have any comments or suggestions about this survey?

Is there anything you would like to add that has not been addressed? Or, do you have any comments or suggestions about this survey? [Type your answer here]

Over the next two months, Sigma will be running one-off discussion groups of people who filled out the survey in order to discuss some issues around clinic use in more detail. The groups will be entirely confidential and will last for a maximum of 2 hours. All participants will be given £20 cash towards travel expenses
Would you be intested in taking part in one-off discussion group?

No

Yes I am interested in taking part in a discussion group

Thank you for your interest in taking part in a discussion group. You will be asked for your contact details on a seperate questionnaire in a moment. The answers that you have just given on this anonymous survey will NOT be connected to your contact details.

London HIV Commissioning Public and Patient Engagement

The London Specialised Commissioning Group has an HIV Public and Patient Engagement (PPE) email list and Group to bring together patient voices to influence commissioning and delivery of HIV services.

The email list is open for anyone with an interest in HIV PPE to join. As well as the email group, we have a PPE group to which identified patient reps will be invited. By being on the email list, you will receive information about HIV commissioning and be able to feed your views in. Individuals added to the email list are not required to disclose their HIV status and only members of the HIV Commissioning Team have access to emails address which are stored in a protected data area.

Email communication with members is done via a BCC email (Blind carbon copy) in all cases. Anyone wishing to join the group to attend meetings or to receive relevant HIV commissioning information should email Sonia.akbari@londonscg.nhs.uk to be added to the circulation list.

THANK YOU VERY MUCH FOR TAKING PART

THIS SURVEY WILL HELP IMPROVE NHS SERVICES FOR PEOPLE LIVING WITH HIV

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