HIV patient engagement project (NHS London)

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This survey is for people with diagnosed HIV. It is being carried out by Sigma Research on behalf of the London Specialist Commissioning group (NHS London). The results will be used to improve NHS services for people living with diagnosed HIV. The survey is ANONYMOUS – you will not be asked for your name or address and do not need to provide us with any means of contacting you in the future. Please answer all questions honestly.

Please take part if you …

have diagnosed HIV, and
use NHS HIV services in London, and
are aged 16 or older.

What’s it about?

The survey asks about your experience of using NHS HIV services, and how you feel these could be improved. It will take 15 minutes to complete the survey.

What about data protection?

We guarantee your anonymity. We will NOT collect the IP-address of your computer or install any cookies on it. We will not collect any information about you that would allow anybody to identify you. A report of the survey results will be produced by the end of June 2012. It will be available from our website at www.sigmaresearch.org.uk

Who are we?

Sigma Research is a social research group specialising in the behavioural and policy aspects of HIV and sexual health, as part of the London School of Hygiene & Tropical Medicine. In the last ten years, Sigma Research has undertaken more than fifty research and development projects concerned with the impact of HIV on the sexual and social lives of a variety of populations. You can get more information about this survey at http://sigmaresearch.org.uk/projects/project54. If you have any concerns about the study please contact Peter Keogh (peter.keogh@lshtm.ac.uk)

Please complete this survey ONLY ONCE.

Tick both of these boxes to say that you have read and understood what the questionnaire is about, that you want to take part and that you are aged 16 or over. ANSWER REQUIRED

I have read and understood the above information and want to take part in the survey

OR

I have read and understood the above information and DO NOT want to take part.

And ANSWER REQUIRED

I am aged 16 or older.

Thank you for your interest in the HIV patient engagement project. The results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

Demographics - About you ...

Are you ..

Female

Male

How old are you? ANSWER REQUIRED

How old are you?

Which local authority (Council) area do you live in?
(e.g Lambeth, Hackney) if you don't know your local authority, please give the FIRST HALF and the next number of your home postcode (e.g. E17 1; SW2 3) or the name of your area (eg. Stockwell, Walthamstow)

Which local authority (Council) area do you live in?
(e.g Lambeth, Hackney) if you don't know your local authority, please give the FIRST HALF and the next number of your home postcode (e.g. E17 1; SW2 3) or the name of your area (eg. Stockwell, Walthamstow)

What is your ethnic group?

WHITE: English/Welsh/Scottish/Northern Irish/British

WHITE: Irish

WHITE: Gypsy or Irish Traveller

WHITE: Any other white background

MIXED/MULTIPLE: White and Black Caribbean

MIXED/MULTIPLE: White and Black African

MIXED/MULTIPLE: White and Asian

MIXED/MULITPLE: Any other background

ASIAN/ASIAN BRITISH: Indian

ASIAN/ASIAN BRITISH: Pakistani

ASIAN/ASIAN BRITISH: Bangladeshi

ASIAN/ASIAN BRITISH: Chinese

ASIAN/ASIAN BRITISH: Any other Asian background

BLACK/BLACK BRITISH: African

BLACK/BLACK BRITISH: Caribbean

BLACK/BLACK BRITISH: Any other Black background

OTHER: Arab

OTHER: Any other ethnic group

Please say what other White background?

Please say what other White background?

Please say what other mixed/multiple ethnic groups background?

Please say what other mixed/multiple ethnic groups background?

Please say what other Asian background?

Please say what other Asian background?

Please say what other Black background?

Please say what other Black background?

Please say what other ethnic group background?

Please say what other ethnic group background?

Which country were you born in?

Which country were you born in?

Thank you for your interest in the HIV patient engagement project. It is for adults 16 years and over, we cannot use your data. The results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

Demographics - About you ...

How long, in total, have you lived in the UK?
(e.g. 3 months, 5 years 8 months)

Year/s

Month/s

Do you have any problems associated with immigration to the UK?

No

Yes

Please describe your problems associated with immigration to the UK.

Please describe your problems associated with immigration to the UK. [Type your answer here]

Demographics - About you..

What are your current living arrangements?
Tick all that apply

I live alone

I live with a partner

I live with a child / children I am responsible for

I live with my parents / step parents

I live with other family members

I live with friends

I live with housemates or people I share with

I live in temporary accommodation

I am in prison

I live in a detention centre

I am homeless

Please say which other family members you live with?

Please say which other family members you live with?

What is your highest educational qualification?

I have no educational qualifications

O-levels/ GCSEs/ CSEs or equivalent (left school at age 16)

A-levels or equivalent (left school at age 18)

University degree or higher

Other, such as vocational or professional qualifications

Please say what other vocational or professional qualifications you have.

Please say what other vocational or professional qualifications you have.

About you ..

Are you:

Heterosexual (straight)

Gay

Lesbian

Bisexual

Other

How do you describe yourself?

How do you describe yourself?

Are you a Trans-person? (Transexual / Transgender – someone who has changed or intends to change their biological sex)

No

Yes

How do you describe yourself?

How do you describe yourself? [Type your answer here]

Do you have haemophilia (a blood disorder that impairs the body’s ability to control bleeding)?

No

Yes

Have you ever injected drugs (not including any prescribed by your doctor)?

No

Yes

Have you injected drugs in the last 12 months?

No

Yes

Demographics - About you ...

Which of these best describes your current situation?
Tick all that apply

Full-time education

Part-time education

On a training scheme / Back-to-Work type activity

Full-time employment

Part-time employment

Casual / cash-in-hand employment

Carer / homemaker

In employment and receiving tax credits

Not in employment and registered for benefits

Not in employment and not registered for benefits

Unable to work (long-term illness / disability / medically retired)

Not allowed to work (immigration reasons)

Retired

In prison

Other

Please say what other.

Please say what other.

What is your gross HOUSEHOLD income (before any deductions for Income Tax and National Insurance contributions) that you receive from all sources including welfare benefits, NASS payments or pensions?

Which time period would you prefer to give your gross income in?

Weekly

Monthly

Yearly

My gross income per WEEK is...

Weekly income

My gross income per MONTH is...

Monthly income

My gross income per YEAR is...

Yearly income

You and HIV infection ...

Have you ever received an HIV test result?

No, I've never received an HIV test result

Yes, I've tested positive (I have HIV infection)

Yes, my last test was negative (I did not have HIV infection at the time of the test)

This research is about people living with HIV. You are very welcome to read and complete the rest of the survey however we will be unable to use your data.
What would you like to do?

Exit the survey now

Continue reading the survey

In which year were you first diagnosed HIV positive?

In which year were you first diagnosed HIV positive?

Were you first diagnosed with HIV within the last 12 months?

No

Yes

Were you first diagnosed with HIV in the UK?

No

Yes

Thank you for your interest in the HIV patient engagement project, the results will be available from our website http://www.sigmaresearch.org.uk. by the end of June 2012.

You and HIV infection ...

In what country were you first diagnosed with HIV?

In what country were you first diagnosed with HIV?

Were you first diagnosed with HIV in London?

No

Yes

In what kind of service were you first diagnosed with HIV?

At your General Practitioner / family doctor

At a hospital in a GUM / STD / HIV clinic

At a hospital at another type of out-patient clinic

In hospital at Accident & Emergency (A&E)

In hospital on a ward (as an in-patient)

At an ante-natal clinic (during pregnancy)

At a community testing centre (for example, fasTest)

At a private clinic

While donating blood

I used a home testing kit

Somewhere else

Please say where else:

Please say where else:

What was the name of the hospital where you were first diagnosed with HIV?

What was the name of the hospital where you were first diagnosed with HIV?

Ilness disability and HIV infection...

Since your diagnosis, have you been ill because of HIV (not including treatment side effects)?

No

Yes

Who knows that you have HIV?
Tick one answer on each row.

No

Yes

Not applicable

your partner

your partner =No

your partner =Yes

your partner =Not applicable

your mother

your mother =No

your mother =Yes

your mother =Not applicable

your father

your father =No

your father =Yes

your father =Not applicable

your GP (family doctor)

your GP (family doctor) =No

your GP (family doctor) =Yes

your GP (family doctor) =Not applicable

your employer

your employer=No

your employer=Yes

your employer=Not applicable

All

Some

None

Not applicable

your children

your children =All

your children =Some

your children =None

your children =Not applicable

your brothers / sisters

your brothers / sisters =All

your brothers / sisters =Some

your brothers / sisters =None

your brothers / sisters =Not applicable

your friends

your friends =All

your friends =Some

your friends =None

your friends =Not applicable

your work colleagues

your work colleagues =All

your work colleagues =Some

your work colleagues =None

your work colleagues =Not applicable

other people you live with

other people you live with=All

other people you live with=Some

other people you live with=None

other people you live with=Not applicable

Do you have any long-standing illness, disability or infirmity? (by long-standing we mean anything that has troubled you over a period of time or that is likely to affect you over a period of time?)

No

Yes

Do you have...

Problems or disabilities (including arthritis or rheumatism) connected with your arms or hands?

Problems or disabilities (including arthritis or rheumatism) connected with your legs or feet?

Problems or disabilities (including arthritis or rheumatism) connected with your back or neck?

Difficulty in seeing (while wearing spectacles or contact lenses)?

Difficulty in hearing?

A speech impediment?

Severe disfigurements, skin conditions, allergies?

Chest or breathing problems, asthma, bronchitis?

Heart, blood pressure or blood circulation problems?

Stomach, liver, kidney or digestive problems?

Diabetes?

Depression, bad nerves or anxiety?

Epilepsy?

Severe or specific learning difficulties?

Mental illness or suffer from phobias, panics or other nervous disorders?

Progressive illness not included elsewhere (eg cancer not included above, multiple sclerosis, symptomatic HIV, Parkinson's disease, Muscular Dystrophy)?

Other health problems or disabilities

Please say what other health problems or disabilities you have?

Please say what other health problems or disabilities you have? [Type your answer here]

Using HIV out-patients clinics

Since your HIV diagnosis which of the following London HIV clinics have you EVER visited?
Tick as many as apply

None – I have never been to an NHS HIV clinic in London

56 Dean Street (formerly Victoria Clinic)

The Sydenham Centre / Outpatients East @ Barking Hospital

The HIV Service @ Barts & The London

Sexual Health Clinic @ Beckenham Beacon

The Patrick Clements Clinic @ Central Middlesex Hospital

The West London Centre for Sexual Health @ Charing Cross Hospital

The Kobler Clinic @ Chelsea & Westminster Hospital

Heath Clinic @ Croydon University Hospital (formerly Mayday)

Ealing Hospital HIV clinic

Epsom St. Helier Hospital

The Tudor Centre for Sexual Health @ Hillingdon Hospital

Homerton Hospital

Caldecot Centre @ Kings College Hospital

Wolverton Centre @ Kingston Hospital

The Alexis Clinic @ Lewisham Hospital

Mortimer Market Centre

The Greenway Centre @ Newham Hospital

T1 Coleridge Unit @ North Middlesex Hospital

Northwick Park GUM clinic @ Northwick Park Hospital

Trafalgar Clinic @ Queen Elizabeth Woolwich

The Roehampton Clinic @ Queen Mary’s Hospital

Ian Charleson Day Centre @ Royal Free Hospital

St Ann’s Sexual Health Centre @ St Ann’s Hospital

The Courtyard Clinic @ St Georges Hospital

The Wharfside Clinic @ St Mary’s Hospital (Imperial)

Lydia Clinic @ St Thomas’s Hospital (GSTFT)

Sexual Health West Middlesex @ West Middlesex Hospital

Whipps Cross Hospital

Why have you never attended an HIV out-patients clinic?

Why have you never attended an HIV out-patients clinic? [Type your answer here]

Other options for HIV out-patient clinics

Are you aware that you could use any of the 28 HIV out-patients clinics in Greater London, for free, if you wanted to?

NO I did not know this

YES I knew this

I was not sure about this

How many of these London HIV clinics do you feel are a realistic option for you to use?

Only the one I currently use

2-3

4-5

6-8

9-11

12 or more

Using HIV out-patients clinics

The next set of questions concern the HIV out-patients clinic you visit for routine monitoring and care. If you use more than one HIV clinic please answer these questions thinking of the one that you attended for most of your HIV monitoring and care in the last year. If you do not use a clinic, choose none.

How many HIV out-patients clinics did you attend for monitoring and care in the last year?

None

One

Two

Three

Four or more

Why did you not attend an HIV out-patients clinic in the last year?

Why did you not attend an HIV out-patients clinic in the last year? [Type your answer here]

Why did you attend more than one HIV out-patients clinic in the last year?

Why did you attend more than one HIV out-patients clinic in the last year? [Type your answer here]

In the last year, which HIV out-patients clinic did you usually visit for monitoring and care?

None – I did not visit any HIV clinic in the last year

None – I only visited a HIV clinic outside London the last year

56 Dean Street (formerly Victoria Clinic)

The Sydenham Centre / Outpatients East @ Barking Hospital

The HIV Service @ Barts & The London

Sexual Health Clinic @ Beckenham Beacon

The Patrick Clements Clinic @ Central Middlesex Hospital

The West London Centre for Sexual Health @ Charing Cross Hospital

The Kobler Clinic @ Chelsea & Westminster Hospital

Heath Clinic @ Croydon University Hospital (formerly Mayday)

Ealing Hospital HIV clinic

Epsom St. Helier Hospital

The Tudor Centre for Sexual Health @ Hillingdon Hospital

Homerton Hospital

Caldecot Centre @ Kings College Hospital

Wolverton Centre @ Kingston Hospital

The Alexis Clinic @ Lewisham Hospital

Mortimer Market Centre

The Greenway Centre @ Newham Hospital

T1 Coleridge Unit @ North Middlesex Hospital

Northwick Park GUM clinic @ Northwick Park Hospital

Trafalgar Clinic @ Queen Elizabeth Woolwich

The Roehampton Clinic @ Queen Mary’s Hospital

Ian Charleson Day Centre @ Royal Free Hospital

St Ann’s Sexual Health Centre @ St Ann’s Hospital

The Courtyard Clinic @ St Georges Hospital

The Wharfside Clinic @ St Mary’s Hospital (Imperial)

Lydia Clinic @ St Thomas’s Hospital (GSTFT)

Sexual Health West Middlesex @ West Middlesex Hospital

Whipps Cross Hospital

Using your usual HIV out-patients clinic...

How long have you been using ?

Since I was first diagnosed with HIV (never been to any other clinic)

Less than a year

1-2 years

3-4 years

5-7 years

8-10 years

11+ years

How often do you go to ?

More than once a month

Every month

Every three months

Every six months

Once a year

Less than once a year

How do you usually receive results from ?
Tick as many as apply

By visiting the clinic in person

By talking on the phone

By text

By letter

By email

Via my GP

What are the most important factors in your decision to use ?
Tick as many reasons as apply

The opening hours

It is easy to get to

It is close to my home

The staff are excellent

They offer services outside office hours (eg. evenings / weekends)

They offer co-infection clinics (eg. TB, hepatitis)

The service is sympathetic towards gay men

The service is sympathetic towards African people

They offer email clinics

They offer telephone clinics

They offer home delivery for prescriptions

They offer newfill services

They have an in-patient ward

They have world renowned doctors

They have a great reputation

They were recommended to me

I can always phone up and get help and advice if I need it

I feel that my confidentiality is looked after well

They link with my GP

They refer me directly to other specialists if I need it

They involve me in decisions about my care

They offer a peer support service

They have a Community Nurse Specialist

They are linked into social services

They have counselling services

Other

Please say which other factors?

Please say which other factors? [Type your answer here]

What is the SINGLE most important factor in your decision to use ?

The opening hours

It is easy to get to

It is close to my home

The staff are excellent

They offer services outside office hours (eg. evenings / weekends)

They offer co-infection clinics (eg. TB, hepatitis)

The service is sympathetic towards gay men

The service is sympathetic towards African people

They offer email clinics

They offer telephone clinics

They offer home delivery for prescriptions

They offer newfill services

They have an in-patient ward

They have world renowned doctors

They have a great reputation

They were recommended to me

I can always phone up and get help and advice if I need it

I feel that my confidentiality is looked after well

They link with my GP

They refer me directly to other specialists if I need it

They involve me in decisions about my care

They offer a peer support service

They have a Community Nurse Specialist

They are linked into social services

They have counselling services

Other

Please say which other factor?

Please say which other factor? [Type your answer here]

Using your usual HIV out-patients clinic...

What is the single most important service improvement that could make, to improve the service for you personally?

What is the single most important service improvement that could make, to improve the service for you personally? [Type your answer here]

How often do you understand what staff from tell you about your HIV monitoring and care (including HIV treatments)?

Never

Usually

Always

How often do you ask staff from questions when you don’t understand what they are saying about your HIV monitoring and care (including HIV treatments)?

Never

Usually

Always

How satisfied are you about the way you and the staff of make decisions together, about your HIV monitoring and care (including HIV treatments)?

Very satisfied

Somewhat satisfied

Not at all satisfied

Your last visit to HIV out-patients

Before today when did you last visit ?

Within the last 4 weeks

Within last 3 months

Within the last 6 months

Within the last 12 months

More than a year ago

For that specific visit to , how do you get there?
Tick all that apply

Bus

Tube

Train

Taxi / mini-cab

Private car

Walk only

For that specific visit to how long did it take you to get there from your home?

Less than 15 minutes

15 - 30 minutes

31 - 45 minutes

46 - 60 minutes

61 - 90 minutes

90 -120 minutes

2 – 3 hours

3 – 4 hours

more than 4 hours

For that specific visit to , how was your appointment made?

When I was leaving after my previous appointment

By visiting the clinic in person

By talking on the phone

By text

By letter

By email

Your last visit to HIV out-patients

Why did you attend for that specific visit?
Tick all that apply

For an emergency appointment

Because you had a specific health problem / illness

For a routine appointment with a doctor

For an investigation / diagnostic tests

For a procedure

For an appointment with another member of the HIV team eg. dietician

To give a blood sample

To receive test results

To collect a prescription

For an sexual health (STI) check-up

For treatment of a sexually transmitted infection

Other reason

Please say which procedure?

Please say which procedure? [Type your answer here]

Please say what other reason?

Please say what other reason? [Type your answer here]

When you went to for that specific visit, which staff members did you see?
Tick all that apply

Receptionist

Health advisor/s

Nursing staff

An HIV consultant (doctor)

A doctor from another speciality

Pharmacist

Dietician / nutritionist

Psychologist

Occupational therapist (OT)

Peer Advisor / Patient rep

Social worker

Sexual health staff

Voluntary sector worker

Other staff roles to be added?

When you went to for that specific visit, how long were you in the clinic?

Less than 15 minutes

15 – 30 minutes

31 – 45 minutes

46 – 60 minutes

61 – 90 minutes

90 -120 minutes

2 – 3 hours

3 – 4 hours

More than 4 hours

Using HIV treatments

Have you EVER taken antiretroviral treatment (sometimes known as ARVs, ART or HAART) for your HIV infection?

No

Yes

Why have you never taken antiretroviral treatment for your HIV infection?
Tick as many as apply.

My doctor says I don’t need ARV treatment at the moment

I don’t feel I need ARV treatment at the moment

To avoid the side-effects

I'm afraid people will notice

I don't want to be reminded about HIV every day

It would interfere with my work / education / family

I don’t believe ARVs will help my HIV

It interacts with my other medication/s

Because I would need to pay for them and I can’t afford it

Other reason

Please say what other reason?

Please say what other reason? [Type your answer here]

Are you currently taking antiretroviral treatment?

No

Yes

Why have you stopped taking antiretroviral treatment?
Tick as many as apply.

My doctor says I don’t need ARV treatment at the moment

I don’t feel I need ARV treatment at the moment

To avoid the side-effects

I'm afraid people will notice

I don't want to be reminded about HIV every day

It would interfere with my work / education / family

I don’t believe ARVs will help my HIV

It interacts with my other medication/s

Because I would need to pay for them and I can’t afford it

Other reason

What other reason have you stopped taking antiretroviral treatment?

What other reason have you stopped taking antiretroviral treatment? [Type your answer here]

Using HIV treatments

Do you feel you know enough about the antiretroviral treatments you are taking, at the moment?

No

Yes

How do you find taking ARV treatments?

Easy

OK

Difficult

Please say why it is difficult?

Please say why it is difficult? [Type your answer here]

How many doses of HIV treatments have you missed in the last two weeks?

None

ONE or TWO doses

THREE or FOUR doses

FIVE or SIX doses

SEVEN or MORE doses

Using HIV treatments

What was the result of your viral load test the last time you had it monitored?

Undetectable

Detectable

I was told but I don't remember the result

It was measured but I was not told the result

It was not measured

I don't remember

What was the result of your cd4 test the last time you had your HIV infection monitored?

Less than 200 cells/μl

200-349 cells/μl

350-500 cells/μl

More than 500 cells/μl

I was not told the result

I was told but I don't remember the result

In the last 12 months, have you had any problems getting access to ARV treatments?

Not needed any

No

Yes

Please say what problems you have had?

Please say what problems you have had? [Type your answer here]

Primary care services (GPs and family doctors)

Are you registered with a GP or primary care service?

No

Yes

Why are you not registered with a GP / primary care service?

Why are you not registered with a GP / primary care service? [Type your answer here]

How long have you been using this GP or primary care service?

Since I was diagnosed (not been to any other GP since HIV diagnosis)

Less than a year

1-2 years

3-4 years

5-7 years

8-10 years

11+ years

How often do you go to your GP or primary care service?

More than once a month

Every month

Every three months

Every six months

Once a year

Less than once a year

Is your GP / primary care service aware that you have diagnosed HIV?

No

Yes

Why have you not told your GP / primary care service you have diagnosed HIV?

Why have you not told your GP / primary care service you have diagnosed HIV? [Type your answer here]

To what extent is your GP / primary care service involved in your HIV care?

Never

Rarely

Sometimes

Often

Very often

Does not apply to me

How is your GP / primary care service involved in your HIV monitoring and care?

How is your GP / primary care service involved in your HIV monitoring and care? [Type your answer here]

What is the single most important change that your GP / primary care service could make to improve the service for you personally?

What is the single most important change that your GP / primary care service could make to improve the service for you personally? [Type your answer here]

Other services used...

Have you currently have any of the following conditions?
Tick all that apply

Tuberculosis (TB)

Hepatitis B

Hepatitis C

Renal disease

Liver disease

Heart disease

Lymphoma

Diabetes

Mental health problems

Substance misuse problems

Any other co-infections or morbidities common to PWHIV to add

Who knows you have Tuberculosis?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Tuberculosis?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Hepatitis B?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Hepatitis B?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Hepatitis C?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Hepatitis C?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Renal disease?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Renal disease?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Liver disease?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Liver disease?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Lymphoma?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Lymphoma?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Diabetes?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Diabetes?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Mental health problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Mental health problems?

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who knows you have Substance misuse problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

Who is involved in the management of your Substance misuse problems?
Tick all that apply

General practitioner and primary care staff

HIV consultant and / or HIV clinic staff

A specialist doctor or nurse related to that condition

In the last year, what other NHS services have you used?
Tick all that apply

Outpatient clinic (not HIV) for an investigation

Outpatient clinic (not HIV) for monitoring or care.

Planned inpatient admission

Emergency inpatient admission

Intensive care

Maternity services

Substance misuse services

In the last year, what voluntary sector HIV organisations have you used?
Tick all that apply

{FULL LIST OF CHARITABLE HIV ORGANISATIONS IN LONDON}

What do you need?

In the last 12 months, have you had any problems (for ANY reason) in relation to:
Choose one answer on each row

No

Yes

Does not apply to me

Housing and living conditions

Housing and living conditions=No

Housing and living conditions=Yes

Housing and living conditions=Does not apply to me

Eating and drinking

Eating and drinking=No

Eating and drinking=Yes

Eating and drinking=Does not apply to me

Sleeping

Sleeping=No

Sleeping=Yes

Sleeping=Does not apply to me

Household chores and self care

Household chores and self care=No

Household chores and self care=Yes

Household chores and self care=Does not apply to me

Mobility - ability to get about

Mobility - ability to get about=No

Mobility - ability to get about=Yes

Mobility - ability to get about=Does not apply to me

Money - getting enough to live on

Money - getting enough to live on =No

Money - getting enough to live on =Yes

Money - getting enough to live on =Does not apply to me

Drugs and alcohol

Drugs and alcohol =No

Drugs and alcohol =Yes

Drugs and alcohol =Does not apply to me

Anxiety and depression

Anxiety and depression =No

Anxiety and depression =Yes

Anxiety and depression =Does not apply to me

Self-confidence

Self-confidence =No

Self-confidence =Yes

Self-confidence =Does not apply to me

Immigration status

Immigration status =No

Immigration status =Yes

Immigration status =Does not apply to me

Friendships

Friendships =No

Friendships =Yes

Friendships =Does not apply to me

Looking after children

Looking after children =No

Looking after children =Yes

Looking after children =Does not apply to me

Relationships

Relationships =No

Relationships =Yes

Relationships =Does not apply to me

Sex

Sex =No

Sex =Yes

Sex =Does not apply to me

Knowledge of HIV treatments

Knowledge of HIV treatments =No

Knowledge of HIV treatments =Yes

Knowledge of HIV treatments =Does not apply to me

Taking HIV treatments regularly

Taking HIV treatments regularly =No

Taking HIV treatments regularly =Yes

Taking HIV treatments regularly =Does not apply to me

Dealing with health professionals

Dealing with health professionals =No

Dealing with health professionals =Yes

Dealing with health professionals =Does not apply to me

Discrimination

Discrimination =No

Discrimination =Yes

Discrimination =Does not apply to me

Skills, training and job opportunities

Skills, training and job opportunities =No

Skills, training and job opportunities =Yes

Skills, training and job opportunities =Does not apply to me

and finally ...

Is there anything you would like to add that has not been addressed?

Is there anything you would like to add that has not been addressed? [Type your answer here]

Do you have any comments or suggestions about this survey?

Do you have any comments or suggestions about this survey? [Type your answer here]

Would you like to volunteer to take part in a small single focus group to discuss this research further? (you do not have to if you do not want to)

No

Yes

Would you like to volunteer to take part in further patient engagment activity in the future? (you do not have to if you do not want to)

No

Yes

THANK YOU VERY MUCH FOR TAKING PART

Now please press "submit answers".

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